For those who don't know my story, you can of course read my blog, www.CRPSablaze.wordpress.com.
Gina (my caregiver and friend) and I are pursuing help for medical testing and treatment that I need which is not covered by Medicaid/Medicare (my health insurance).
My challenges are complicated, covering many bodily systems, so standard medicine has not been able to address what requires a holistic approach. To give you an idea of some of the difficulties we are trying to address: heat intolerance due in part to anhydrosis (I don't sweat), Complex Regional Pain Syndrome (CRPS, a chronic pain condition provoked by the trauma of double leg reconstructive surgeries performed years ago), Migraines, light and sound sensitivity, Dysautonomia (dysregulation in the autonomic nervous system resulting in constant elevated heart rate…), swallowing difficulty due to neurological deficits (making food choices extremely difficult), Histamine Intolerance (Genetics show an inherited deficiency in metabolizing histamine which creates pain, dysfunction, and more food restrictions), and the list goes on.
We are having some success with a few local practitioners, while some are and will be requiring travel, at least for a time. Alongside our wellness efforts, I am continuing to pursue a career change and required schooling so that I might work again, health permitting. Financial resources will help speed the process of pursuing treatment.